Fibro & More Fibro

In the midst of transitioning from one fibromyalgia to another, I am feeling fibro. The fatigue is very heavy. Use of muscle relaxer and/or a med to take for nausea cause extra tiredness so, of late, I’m very reluctant to take either because it just lays me out. Not having much, if any, response to the new med as well as avoidance of treatment prescriptions combine to cause a full fibro slate of symptoms.

“Which symptoms are in response to discontinuing one long-term prescription, fibro lay bare, or side effects from starting the new?” Hell if I know.

Recently, I saw a post somewhere asking people to share which symptom of fibromyalgia they find most surprising, one of the respondents answered by saying that fibromyalgia leads to so many problems, she can’t tell what’s a fibro symptom apart from other issues. I agree with her answer but it’s not so high on the surpriso-meter for me.

Predicting continued widespread pain following my diagnosis, I hadn’t anticipated the sick feeling that develops over the day typically, though can be there upon waking, is so hard to describe. I may look fine but the fibro sickness, for me, feels uncomfortable in my chest but it’s not the flu, nausea at the diaphragm and stomach but not from eating something ‘bad’ as well as general feelings of malaise and fatigue but no fever.

In early days, I wouldn’t have guessed that I’d be experiencing this “sick.” Maybe I’m doing when the sun comes up and I’ve moved some, best time of day for me, and then suddenly I’m miserably ill. The rx I use for nausea is prescribed for chemo patients. The muscle relaxer is quite strong as well and I usually end up needing to take it at some point in the day. The anti nausea remedy is necessary in waves.

“You’re not going anywhere or doing anything. Take the medication you require, and so what if it knocks you out?” I say to myself. In the evening, I sleep about 11 hours on average, though with a couple trips to the restroom. Snoozing for two hours in the afternoon, the usual length of a “nap,” erases a good fraction of my time going nowhere. Not that missing two hours of my agenda is a bad thing.

I’m not sure why I resist it so, the respite beginning at one or two o’clock. One reason I do identify is that it’s nearly impossible for me to escape the dozing mindscape even after my eyes open. It causes me to stay awake an hour or two later which ver y often results in a late sleep-in the next morning. “So what?” I don’t know. Maybe it’s an effort to control something.

It may take weeks for me to feel the full effect of my the new med but I wanted to react right away. I hope it does kick in at some point. If this medication isn’t helpful, I will despair.

So, just checking in for a minute. I’m generally in a cruddy condition; not proofreading right now but publishing anyway and don’t know how long it will be before I write again. Hope this finds you well.