Tag Archives: Chronic illness

Ramble Gamble

Rambling posts are a collection of thoughts I have that don’t warrant a post of their own. I also include personal life circumstances, usually near the end. Do you speak your mind? Are there folks with whom you avoid voicing your opinions? Is it a risk to share your thoughts? I find I keep manyContinue reading “Ramble Gamble”

I Can’t Care

Recently, I shared that I have writer’s block. A draft was completed and I posted that, which felt good. Since then, I just can’t care about writing or blogging or connecting. I forget to even open SurvivingSara.net. I’m sick. This is a bad fibro flare. Stress about life events is heavy with no relief forContinue reading “I Can’t Care”

Slow Thinking

I’ve taken to sharing with people that I have cognitive difficulties when I have trouble in the midst of a conversation, usually about scheduling an appointment. A friend and fellow blogger, Ashley https://mentalhealthathome.org, used the phrase ‘slow thinking’ in her writing and I think I like it. This week, I’ve been seriously slow thinking. I’veContinue reading “Slow Thinking”

Color Me Pleasant

Having received a brief litany of my current state of fibromyalgia (frustratingly reluctant to improve), my husband grew quiet and then began, “It’s so weird. It seemed like when you had a broken leg…” his voice fading. “What? When I had a broken leg, what?” “I don’t know how to describe it. When it wasContinue reading “Color Me Pleasant”

Deep in the Lilacs

My hometown is known as the Lilac City. The pretty bushes can be spotted all around the area in purples, pinks, and white. Each year in May, the main event of the Lilac Festival is the nighttime Armed Forces Torchlight parade. It really is beautiful with floats and bands lit up in creative ways. AnotherContinue reading “Deep in the Lilacs”

With Everything, Turn, Turn, Turn

I sense change coming. From this side of nearly six decades, a most profound lesson I’ve internalized is that we will always face new challenges. Sometimes the current season feels like trouble that’s here to stay. When you have a two or three-year-old throwing a fit as they work out exactly what they can controlContinue reading “With Everything, Turn, Turn, Turn”

Party Time

My husband did a great job at work in 2021, reaching heightened goals, and he is being recognized at a party Friday night, two days from now. The company provides everyone who makes “The President’s Club” a room at a very nice resort not far from where we live. Check-in will be followed by appetizersContinue reading “Party Time”

Mini Medical School

On YouTube, I came across a nearly-two=hour video titled “Mini Medical School: Fibromyalgia.” I’ve seen previous fibromyalgia videos but haven’t watched much because, after all, I have fibro and have been to multiple doctors regarding diagnosis and treatment. Over and over, I’ve been told that there is nothing to be done besides taking prescription medicine,Continue reading “Mini Medical School”

I’m Enough and Nothing At All

My whole life I wanted to be enough, for someone to behold me, smile, and say, “You are just the person I’ve been looking for!” Smart enough, funny enough, good enough… Take it all away. Cognitive abilities have declined. Isolation is the rule. Even speaking is often interrupted by tears. Family and close friends stillContinue reading “I’m Enough and Nothing At All”

Neurological Condition

Research at the tip of one’s fingers brings a new understanding of fibromyalgia. The interested members of the medical community know what it is, where its origin is in the depth of the brain, and how it attacks the body. I haven’t heard anything new since 2009. As odd as it sounds, I’m so excitedContinue reading “Neurological Condition”

Fu@%&ng Fibro

Plans for today, nearly two months after my bone-breaking fall and still not weightbearing since surgery just a month ago, included a shower and going outside. Early in this injury-surgery-recovery process, I truly could not differentiate between anything that might be related to my leg versus fibromyalgia. In the past, I’d wished fibro was visible,Continue reading “Fu@%&ng Fibro”

30 Years

Traditional Wedding Vows Example: 1 “I, (Name), take you (Bride/Groom), to be my (Husband/ Wife), to have and to hold from this day forward, for better or for worse, for richer, for poorer, in sickness and in health, to love and to cherish; from this day forward until death do us part.” Well, my husband andContinue reading “30 Years”

No Words

When time came to confirm my counseling appointment, scheduled for yesterday, instead of choosing “confirm” or “cancel” I left a rambling message for my provider. One bit about having two sprained ankles, explaining I literally didn’t know what to do. You’re supposed to talk to your support when you’re down, yes? I waited a fewContinue reading “No Words”

Where It’s At

I got two sprained ankles and a microphone. Can’t get that Beck song out of my head. It pops up every time I think or talk about my situation. Relevant pictures will follow the text, but they’re pretty gross, so this is your warning. I have two sprained ankles and two injured knees. The painContinue reading “Where It’s At”