SurvivingSara

Tag: fibromyalgia

  • Dream a Little Dream

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    Sara Z
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    Detailed, emotional dreams play in my night theater. Frequently, the plays have a theme, one to another night to night for a few days. No matter the characters or plot involved, I don’t quite belong. Sometimes I’m keeping a secret that would result in loss of esteem were it exposed. Other times. I skirt the…

  • 45+3

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    Sara Z
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    My mother-in-law sold her house, pending appraisal, less than a week after putting it on the market. There’s a 45-day escrow plus three days for moving. She’ll be relocating to our home immediately after Labor Day. The plan that was drawn up after the death of her husband in January is coming to fruition imminently.…

  • Hearing Hangover

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    Sara Z
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    Following my discouraging disability hearing yesterday, I yet felt weight move from my shoulders, down through my hands. I had my husband brush the negative energy down my arms and out my fingertips. Sleep was spotty with blurred edges. This morning I woke up at my usual time, about 7 am, and had a cup…

  • Hard of Hearing

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    Sara Z
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    The problem with having slow thinking, trouble expressing yourself, and difficulty focusing is trying to describe your situation and limitations effectively in a disability hearing with an administrative law judge. The hearing started with a medical expert who concluded I had no limittions. None. She referred to notes from my past therapist and more than…

  • Ramble Gamble

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    Sara Z
    in

    Rambling posts are a collection of thoughts I have that don’t warrant a post of their own. I also include personal life circumstances, usually near the end. Do you speak your mind? Are there folks with whom you avoid voicing your opinions? Is it a risk to share your thoughts? I find I keep many…

  • I Can’t Care

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    Sara Z
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    Recently, I shared that I have writer’s block. A draft was completed and I posted that, which felt good. Since then, I just can’t care about writing or blogging or connecting. I forget to even open SurvivingSara.net. I’m sick. This is a bad fibro flare. Stress about life events is heavy with no relief for…

  • Slow Thinking

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    Sara Z
    in

    I’ve taken to sharing with people that I have cognitive difficulties when I have trouble in the midst of a conversation, usually about scheduling an appointment. A friend and fellow blogger, Ashley https://mentalhealthathome.org, used the phrase ‘slow thinking’ in her writing and I think I like it. This week, I’ve been seriously slow thinking. I’ve…

  • If You Want Something Done…

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    Sara Z
    in

    After receiving a diagnosis of fibromyalgia in 2009, I accepted it as well as the repeated professional opinions that nothing could be done to address the situation. Huh, I’ve got a condition and the only advice I get is to deal with it. When fibro was googled, I found many check lists of symptoms, which…

  • Pooped

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    Sara Z
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    Woke up worn out My get up & go got up and went. Exhausted Fatigue is one of the most difficult fibromyalgia symptoms to deal with for me personally. It affects every fiber of my being when it makes itself at home, whether that’s around lunchtime or even first thing in the morning. Today, I…

  • Deep in the Lilacs

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    Sara Z
    in

    My hometown is known as the Lilac City. The pretty bushes can be spotted all around the area in purples, pinks, and white. Each year in May, the main event of the Lilac Festival is the nighttime Armed Forces Torchlight parade. It really is beautiful with floats and bands lit up in creative ways. Another…

  • Party Time

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    Sara Z
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    My husband did a great job at work in 2021, reaching heightened goals, and he is being recognized at a party Friday night, two days from now. The company provides everyone who makes “The President’s Club” a room at a very nice resort not far from where we live. Check-in will be followed by appetizers…

  • Rambling Rows

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    Sara Z
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    Yes, I know they’re tulips. Following are some more of the stand alone thoughts that are in my head, not one worthy of a full post on its own. Good news! I am walking. It’s going pretty well. Of course, I want it to happen quickly, but I can feel that I overdid things yesterday.…

  • Stress Be Gone

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    Sara Z
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    Apparently, my new mantra, “no need for flight or fight,” is only as powerful as the time and energy I give it. As usual, when I get new information or choose a new strategy to improve my condition, I’m so excited and sure this will be the “thing” that makes a difference. The first day…

  • Mini Medical School

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    Sara Z
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    On YouTube, I came across a nearly-two=hour video titled “Mini Medical School: Fibromyalgia.” I’ve seen previous fibromyalgia videos but haven’t watched much because, after all, I have fibro and have been to multiple doctors regarding diagnosis and treatment. Over and over, I’ve been told that there is nothing to be done besides taking prescription medicine,…

  • I’m Enough and Nothing At All

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    Sara Z
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    My whole life I wanted to be enough, for someone to behold me, smile, and say, “You are just the person I’ve been looking for!” Smart enough, funny enough, good enough… Take it all away. Cognitive abilities have declined. Isolation is the rule. Even speaking is often interrupted by tears. Family and close friends still…

  • Neurological Condition

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    Sara Z
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    Research at the tip of one’s fingers brings a new understanding of fibromyalgia. The interested members of the medical community know what it is, where its origin is in the depth of the brain, and how it attacks the body. I haven’t heard anything new since 2009. As odd as it sounds, I’m so excited…

  • Fu@%&ng Fibro

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    Sara Z
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    Plans for today, nearly two months after my bone-breaking fall and still not weightbearing since surgery just a month ago, included a shower and going outside. Early in this injury-surgery-recovery process, I truly could not differentiate between anything that might be related to my leg versus fibromyalgia. In the past, I’d wished fibro was visible,…

  • Times Such as These

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    Sara Z
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    This is gonna be a short one. Wasn’t going to write at all today but gotta capture the thought while it’s still within my grasp, mentally and physically. which is a concern. For example, yesterday I had two pair or reading glasses but now I have none. Surviving Sara is sometimes about choices I make…

  • On the Other Side

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    Sara Z
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    Very relieved to be put back together, as Dr. Barrow described the results of my surgery to my husband post-op. Two nerve blocks for my ankle and low leg have me free of pain for the first time since I fell three weeks ago. Going to enjoy every minute until the blocks wear off. A…

  • Going Under

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    Sara Z
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    A metal plate along with some screws and pins sounds more like a shopping list at the local hardware store than supplies for surgery, but that combo is what I’ve been told is necessary if I ever “want to have a functional ankle.” My fibula has a complete break which changes into a spiral fracture,…